PAS
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|
Project
| Diagnosis
| Symptoms
| Interventions,
Study design and Methods
| Department, Hospital
| Status |
2017 - 2020
| Acute leukemia
| Psychological and social wellbeing:
Symptom burden
Quality of life
| Peer-to-peer support
Patient ambassador
FEASIBILITY STUDY QUALITATIVE INTERVIEW STUDIES SYMPTOM CLUSTER ANALYSIS
| Department of Hematology, Rigshospitalet, Herlev Hospital & Sjællands Universitetshospital, Roskilde
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| Completed and published
|
FAMCARE
|
| | | |
Project
| Diagnosis
| Symptoms
| Interventions,
Study design and Methods
| Department, Hospital
| Satus
|
2019 - 2022
| Hematological malignancy
| Emotional symptoms:
- Distress/Sadness/Loneliness
- Anxiety
- Depression
- Sleep disturbances
- Appetite
Symptom burden Caregiver burden Quality of life
| Peer-to-peer support
Family ambassador
FEASIBILITY STUDY QUALITATIVE INTERVIEW STUDIES CROSS SECTIONAL NATIONAL STUDY SYMPTOM ANALYSIS
| Department of Hematology, Rigshospitalet
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| Completed
|
PACE-Mobil
| | | | |
Project
| Diagnosis
| Symptoms
| Interventions,
Study design and Methods
| Department, Hospital
| Status
|
2017 - 2021
| Older cancer patients with pancreas, lung and gallbladder cancer
| Fatigue
Sarcopenia
Multiple symptoms:
- diarrhea,
- nausea,
- vomiting,
- constipation,
- anorexia,
- fatigue,
- stomatitis,
- hand-foot syndrome,
- skin itching,
- allergy,
- peripheral sensory neuropathy and infection
Physical function Symptom burden Quality of life Physical activity Aerobic capacity, muscle strength, functionality Body composition Symptoms of depression and anxiety, dose intensity, treatment toxicity, hospitalization, and survival
| Supervised exercise and counseling, home walking program and protein supplements
RCT QUALITATIVE INTERVIEW STUDIES SYSTEMATIC REVIEWS SYMPTOM CLUSTER ANALYSIS
| Department of Oncology, Herlev-Gentofte Hospital
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| Completed and published
|
CARES
|
| | | |
Project
| Diagnosis
| Symptoms
| Interventions,
Study design and Methods
| Department, Hospital
| Status
|
2018 - 2020
| Neuro-oncology
brain tumors
| Neuro-cognitive symptoms
Psycho-social symptoms: - worry,
- concerns,
- anxiety
-
depression
Physical deficits
Symptom burden Caregiver burden Changes in role and resources Family dynamics
| Family and Network counseling
FEASIBILITY STUDY COHORT STUDY QUALITATIVE INTERVIEWS SYMPTOM CLUSTER ANALYSIS
| Department of Oncology and Neurosurgery, Rigshospitalet
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| Implemented at The Department of Oncology, Rigshospitalet
|
NEAT-Decision
| | | | |
Project
| Diagnosis
| Symptoms
| Interventions,
Study design and Methods
| Department, Hospital
| Satus
|
2017 - 2020
| Head and Neck cancer
| Physical symptoms:
- difficulty eating,
- loss of weight,
- swallowing,
- speech and voice problems,
- loss of physical capacity
Mental and existential symptoms:
- anxiety,
- fear of cancer recurrence
Social symptoms:
- concern for relatives,
- including underage children
Symptom burden Quality of life
| IT-based needs assessment and patient involvement consultation survivorship
E-PRO
RCT QUALITATIVE INTERVIEW & OBSERVATION STUDIES SYSTEMATIC REVIEW SYMPTOM CLUSTER ANALYSIS
| Department of Otorhinolaryngology; Head and Neck surgery & Audiology Rigshospitalet
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| Completed and published
|
PRO-Symptom Care
|
| | |
Project
| Diagnosis
| Symptoms
| Interventions,
Study design and Methods
| Department, Hospital
| Status
|
2020 - 2022
| Hematological malignancy
undergoing stem cell transplantation
| Multiple physical and emotional symptoms.
Symptom burden Quality of life
| Consultation and
E-PRO
FEASIBILITY STUDY QUALITATIVE INTERVIEWS SYSTEMATIC REVIEW SYMPTOM CLUSTER ANALYSIS
| Department of Hematology, Rigshospitalet
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| Ongoing
|
PACE-AL
| | | | |
Project
| Diagnosis
| Symptoms
| Interventions,
Study design and Methods
| Department, Hospital
| Status
|
2011 - 2021
| Acute Leukemia
| Multiple physical and emotional symptoms.
Symptom burden Quality of life Physical activity Aerobic capacity, muscle strength, functionality
| Supervised exercise and counseling, home walking
program and protein supplements
RCT QUALITATIVE INTERVIEWS SYMPTOM CLUSTER ANALYSIS
SYSTEMATIC REVIEW META-SYNTHESIS CROSS-CUTTING SECONDARY ANALYSES
| Department of Hematology & Center for Integrative Rehabilitation (CIRE), UCSF, Rigshospitalet
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| Completed and published
|
CONNECT
| | | | |
Project
| Diagnosis
| Symptoms
| Interventions,
Study design and Methods
| Department, Hospital
| Status
|
CONNECT 2021-2024
| Ovarian- and endometrial cancer
| Multiple physical and emotional symptoms
Quality of life
Symptoms and Adverse Events
Anxiety
Depression
Self-efficacy
| Systematic nurse-led consultation based on ePRO.
QUASI-EXPERIMENTAL FOUR PHASE SEQUENTIAL COHORT STUDY FEASIBILITY STUDY QUALITATIVE INTERVIEWS PARTICIPANT OBSERVATIONS
| Department of Oncology, Rigshospitalet
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| Ongoing
|
SIMPly-CARE
| | | | |
Project
| Diagnosis
| Symptoms
| Interventions,
Study design and Methods
| Department, Hospital
| Status
|
2020-2024
| Hematological malignancies, including patients following stem cell transplantation
| Multiple physical and emotional symptoms
Symptom burden Quality of life Caregiver burden
| Clinical consultations and PRO data in follow-up care (12 months)
SYSTEMATIC REVIEW RANDOMIZED CONTROLLED TRIAL FEASIBILITY STUDY QUALITATIVE INTERVIEWS
| Department of Hematology, Rigshospitalet
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| Intervention ongoing
|
BELIEVE@BC
| | | | |
Project
| Diagnosis
| Symptoms
| Interventions,
Study design and Methods
| Department, Hospital
| Status
|
2022-2025
| Early breast cancer
|
Psychological and social wellbeing: • Anxiety • Depression • Fatigue • Usability Symptom burden of Health-Related Quality of Life
|
It-based needs assessment and patient involvement survivorship E-PRO mHealth
SYSTEMATIC REVIEW A MIXED METHODS EXPLORATORY
SEQUENTIAL DEVELOPMENT STUDY A CONVERGENT PARALLEL MIXED METHODS FEASIBILITY STUDY
| Department of Endocrinology and Metabolism, Rigshospitalet
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| Ongoing
|
INTACTatHome
| | | | |
Project
| Diagnosis
| Symptoms
| Interventions,
Study design and Methods
| Department, Hospital
| Status
|
| INTACTatHome
2020-2023
| Children and adolescents with cancer and their families
| Symptom burden Caregiver burden
| Developing and evaluating home chemotherapy interventions in a feasibility study.
ETHNOGRAPHIC METHODS. QUALITATIVE INTERVIEWS. WORKSHOPS. USER- INVOLVING DESIGN. QUESTIONNAIRES.
| Department of Pediatric Oncology and Hematology, Rigshospitalet
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| Ongoing
|
CCUS
|
| | | |
Project
| Diagnosis
| Symptoms
| Interventions,
Study design and Methods
| Department, Hospital
| Status
|
Living with CCUS and the increased risk of hematological malignancy – a qualitative study of patient’ perspectives. 2020-2022
| CCUS
| Multiple physical and emotional symptoms.
Symptom burden Quality of life Physical activity Aerobic capacity, muscle strength, functionality
Psychological and social wellbeing. Everyday Life. Patients’ perception of diagnosis information. Quality of life. Anxiety and depression.
| Qualitative interviews
| Department of Hematology, Rigshospitalet
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| Ongoing
|