Program overview Models of Cancer Care

​Diagnoses and symptoms

Projects





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PAS

​Project
​Diagnosis
​Symptoms
Interventions, 
Study design and Methods
​Department, Hospital
2017 - 2020
​Acute leukemia
​Psychological and social wellbeing: 

  • Anxiety
  • Depression
  • Fatigue

Symptom burden
Quality of life 

​Peer-to-peer support 
Patient ambassador

FEASIBILITY STUDY
QUALITATIVE INTERVIEW STUDIES
SYMPTOM CLUSTER ANALYSIS

​Department of Hematology, Rigshospitalet, Herlev Hospital & Sjællands Universitetshospital, Roskilde 





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FAMCARE


​Project
​Diagnosis
​Symptoms
Interventions, 
Study design and Methods
​Department, Hospital
2019 - 2022

​Hematological malignancy
​Emotional symptoms: 

  • Distress/Sadness/Loneliness
  • Anxiety
  • Depression
  • Sleep disturbances
  • Appetite 

Symptom burden
Caregiver burden 
Quality of life

​Peer-to-peer support 
Family ambassador


FEASIBILITY STUDY
QUALITATIVE INTERVIEW STUDIES
CROSS SECTIONAL NATIONAL STUDY
SYMPTOM ANALYSIS

​Department of Hematology, Rigshospitalet













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​PACE-Mobil

​Project
​Diagnosis
​Symptoms
Interventions, 
Study design and Methods
​Department, Hospital
2017 - 2021



​Older cancer patients with pancreas, lung and gallbladder cancer

​Fatigue
Sarcopenia

Multiple symptoms: 
  • diarrhea, 
  • nausea, 
  • vomiting, 
  • constipation,
  • anorexia, 
  • fatigue, 
  • stomatitis, 
  • hand-foot syndrome, 
  • skin itching, 
  • allergy, 
  • peripheral sensory neuropathy and infection

Symptom burden 
Quality of life
Physical activity
Aerobic capacity, muscle strength, functionality
Body composition

Supervised exercise and counseling, home walking program and protein supplements

RCT
QUALITATIVE INTERVIEW STUDIES
SYSTEMATIC REVIEWS
SYMPTOM CLUSTER ANALYSIS



​Department of Oncology, Herlev-Gentofte Hospital




















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CARES


​Project
​Diagnosis
​Symptoms
Interventions, 
Study design and Methods
​Department, Hospital
​2018 - 2020

​Neuro-oncology 
brain tumors

​Neuro-cognitive symptoms
Psycho-social symptoms: 
  • worry, 
  • concerns, 
  • anxiety
  • depression
Physical deficits 

Symptom burden
Caregiver burden
Changes in role and resources 
Family dynamics 

​Family and Network counseling

FEASIBILITY STUDY
COHORT STUDY
QUALITATIVE INTERVIEWS
SYMPTOM CLUSTER ANALYSIS

​Department of Oncology and Neurosurgery, Rigshospitalet







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NEAT-Decision

​Project
​Diagnosis
​Symptoms
Interventions, 
Study design and Methods
​Department, Hospital
2017 - 2020

​Head and Neck cancer
​Physical symptoms:
  • difficulty eating,
  • loss of weight,
  • swallowing,
  • speech and voice problems,
  • loss of physical capacity

Mental and existential symptoms:
  • anxiety, 
  • fear of cancer recurrence

Social symptoms: 
  • concern for relatives, 
  • including underage children

Symptom burden 
Quality of life
​IT-based needs assessment and patient involvement consultation survivorship
E-PRO

RCT
QUALITATIVE INTERVIEW & OBSERVATION STUDIES
SYSTEMATIC REVIEW
SYMPTOM CLUSTER ANALYSIS

​Department of Head and Neck surgery, Rigshospitalet 















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PRO-Symptom Care


​Project
​Diagnosis
​Symptoms
Interventions, 
Study design and Methods
​Department, Hospital
2020 - 2022

​Hematological malignancy
undergoing stem cell transplantation

​Multiple physical and emotional symptoms.

Symptom burden
Quality of life

​Consultation and 
E-PRO

FEASIBILITY STUDY
QUALITATIVE INTERVIEWS
SYSTEMATIC REVIEW
SYMPTOM CLUSTER ANALYSIS

​Department of Hematology, Rigshospitalet









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​PACE-AL

​Project
​Diagnosis
​Symptoms
Interventions, 
Study design and Methods
​Department, Hospital
​2011 - 2021

​Acute Leukemia
​Multiple physical and emotional symptoms.


Symptom burden
Quality of life
Physical activity
Aerobic capacity, muscle strength, functionality

​Supervised exercise and counseling, home walking 
program and protein supplements 

RCT
QUALITATIVE INTERVIEWS
SYMPTOM CLUSTER ANALYSIS
SYSTEMATIC REVIEW 
META-SYNTHESIS
CROSS-CUTTING SECONDARY ANALYSES

​Department of Hematology & Center for Integrative Rehabilitation (CIRE), UCSF, Rigshospitalet














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​CONNECT

​Project
​Diagnosis
​Symptoms
Interventions, 
Study design and Methods
​Department, Hospital
CONNECT 2021-2024

​Ovarian- and endometrial cancer
​Multiple physical and emotional symptoms
Quality of life
Symptoms and Adverse Events
Anxiety
Depression
Self-efficacy

Systematic nurse-led consultation based on ePRO. 

QUASI-EXPERIMENTAL 
FOUR PHASE SEQUENTIAL COHORT STUDY
FEASIBILITY STUDY
QUALITATIVE INTERVIEWS
PARTICIPANT OBSERVATIONS


Department of Oncology, Rigshospitalet














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​SIMPly-CARE

​Project
​Diagnosis
​Symptoms
Interventions, 
Study design and Methods
​Department, Hospital
SIMPly-CARE 2021-2023

​Hematological malignancies, including patients following stem cell transplantation
Multiple physical and emotional symptoms
Symptom burden
Quality of life




Clinical consultations using disease specific PRO data in follow-up care (12 months). 

SYSTEMATIC REVIEW
RANDOMIZED CONTROLLED TRIAL 
FEASIBILITY STUDY
QUALITATIVE INTERVIEWS




​Department of Hematology, Rigshospitalet

















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​BELIVE@BC

​Project
​Diagnosis
​Symptoms
Interventions, 
Study design and Methods
​Department, Hospital
Ph.D. protocol under preparation

​Early breast cancer
Psychological and social wellbeing:
Anxiety
Depression
Fatigue
Symptom burden of Health-Related Quality of Life

It-based needs assessment and patient involvement survivorship 
E-PRO
mHealth

SYSTEMATIC REVIEW
DEVELOPMENT STUDY
MIXED-METHODS FEASIBILITY STUDY
RCT STUDY


​Department of Endocrinology and Metabolism, Rigshospitalet
















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​INTACTatHome

​Project
​Diagnosis
​Symptoms
Interventions, 
Study design and Methods
​Department, Hospital
​INTACTatHome
2020-2023




​Children and adolescents with cancer and their families
​Symptom burden Caregiver burden

​Developing and evaluating home chemotherapy interventions in a feasibility study.

ETHNOGRAPHIC METHODS.
QUALITATIVE INTERVIEWS.
WORKSHOPS.
USER- INVOLVING DESIGN.
QUESTIONNAIRES.


​Department of Pediatric Oncology and Hematology, Rigshospitalet
















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​CCUS

​Project
​Diagnosis
​Symptoms
Interventions, 
Study design and Methods
​Department, Hospital
Living with CCUS and the increased risk of hematological malignancy – a qualitative study of patient’ perspectives. 2020-2022

​CCUS
​Multiple physical and emotional symptoms.

Symptom burden
Quality of life
Physical activity
Aerobic capacity, muscle strength, functionality
Psychological and social wellbeing. Everyday Life. Patients’ perception of diagnosis information. Quality of life.
Anxiety and depression. 


​Qualitative interviews

Department of Hematology, Rigshospitalet














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