Abstract
Patients with cancer in the pancreas, duodenum or bile ducts attend follow-up care after curative surgery. Knowledge about patient experiences and perspectives on follow-up care, and the psychological symptom burden in patients and their partners is scarce. This was investigated in four studies. We conclude that patients experienced a massive gut disruption after surgical treatment and percieved the blood test CA19-9 for detection of cancer recurrence as the focal point of follow-up care. Both patients and their partners had increased first psychotropic medication use throughout the follow-up care period, specially within the first six months after diagnosis. Partners were burdened by long-term insomnia symptoms.
Additional project information
This project was funded by Rigshospitalet and The Novo Nordisk Foundation.
Place of employment
PhD author
Date and place of defense
6th May 2020
Supervisors
Thordis Thomsen (main)
Jens Hillingsø
Susanne Oksbjerg Dalton
Bo Marcel Christensen
Tine Tjørnhøj-Thomsen
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