A research project by Nurse, Cand.scient.san., PhD-student Emilie Haarslev Schröder Marqvorsen
The generic instrument EMPOWER-UP was developed and designed to measure empowerment in patient-healthcare provider interactions as perceived by the patients. As part of the OVERCOME study, this Ph.D.-project will finish the scale development process and conduct psychometric evaluation and validation of both a Danish and an English version.
Empowerment is widely recognized as an important approach to patient-centered care in the context of chronic conditions. People with these conditions depend on the healthcare professionals (HCPs) to support them in realizing and mobilizing their inborn capacity to take responsibility and manage living with their disease.
But, do people with chronic conditions in fact receive truly empowerment-based support?
To answer that question, the healthcare system needs a generic measurement instrument, a questionnaire, able to measure whether the interaction between patients and HCPs actually contributes to empowerment as perceived by the patients across the healthcare system. As no such instrument currently exists, we developed and designed the generic questionnaire EMPOWER-UP, a Patient-Reported Outcome (PRO), able to measure the extent to which patients perceive that the interaction with HCPs overcomes barriers to empowerment, regardless of the context of their disease, where and with whom they interact.
This Ph.D. project aims to finish the development process and to conduct a psychometric evaluation of the EMPOWER-UP. When finished, both a Danish and an English version will be ready to make the aforementioned measurements and to compare the effect and efficacy of healthcare interventions, designed to support and increase empowerment in different settings. This will allow the selection of the most efficient interventions for the benefit of both patients, HCPs and the society.