|
TIME SCHEDULE
|
| Speaker
|
SESSION 1
|
OPENING
|
CHAIR: Marianne Olsen, Søren Walther-Larsen
|
10:00
| 10:10
| Pediatric Palliative Care in Denmark
| Marianne Olsen
Copenhagen Palliative Team for Children and Adolescents |
10:15
| 11:00 | Children's Palliative Care - A Game Changer for Pediatrics
| Joanne Wolfe
Boston Childrens Hospital |
11:00
| 11:45
| Eliciting the Child's Voice in Adverse Event Reporting | Pamela Hinds
Childrens National, Washington |
11:45
| 12:30 | BREAK AND LUNCH
|
SESSION 2
|
ONCOLOGY
| CHAIR: Marianne Olsen, Astrid Sehested
|
12:20
| 13:00 | Palliative care in pediatric oncology | Ana Lacerda
Department of Child and Adolescent Oncology, Lisbon, Portugal |
13:00
| 13:20 | Early phase trials in pediatric oncology and palliative care
| Karsten Nysom
Early Phase Centre, Department of Paediatrics and Adolescent Medicine, Rigshospitalet |
13:20
| 13:40 | Communication with families in pediatric oncology
| Ulrika Kreicbergs
Ersta Skondal Bracke University College, Stockholm |
13:40
| 14:00 | Discussion and questions to speakers | Speakers Opening and Oncology sessions |
|
RESEARCH
|
CHAIR: Joanne Wolfe, Marianne Olsen
|
14:00
| 14:15 | Child mortality and parents' perspectives on losing a child with a life-limiting diagnosis
| Camilla Lykke
Department of Oncology, Rigshospitalet |
14:15
| 14:30 | Rapid fire presentations
|
14:30
| 15:30 | BREAK AND POSTER SESSION
|
SESSION 3
|
NEUROLOGY
|
CHAIR: Susanne Molin, Christina Høi-Hansen
|
15:30
| 16:00 | Neurodegenerative diseases - how do we integrate palliative care?
| Sabine Grønborg
Department og Paediatrics and Adolescent Medicine, Rigshospitalet |
16:00
| 16:20
| Spinal Muscular Atrophy - who should be treated?
| Peter Born
Department of Paediatrics and Adolescent Medicine, Rigshospitalet |
16:20
| 16:40 | Parents advice to health care professionals who treat children with SMA type 1
| Elin Hjort
Ersta Skondal Bracke University College, Stockholm |
16:40
| 17:00 | A boy with SMA type 1 | Presented by bereaved parents |