The parental questionnaires will be comprised of the PARCA-R non verbal cognitive scale and a health and development questionnaire. The Parent Report of Children’s Abilities – Revised (PARCA-R) is a parental questionnaire that can be used to assess children’s non-verbal cognitive and language development at 24 months’ corrected age.

For this follow-up study, an online platform will be developed, where parents of the participating children will be invited to complete the non-verbal cognitive (NVC) part of the PARCA-R questionnaire, in their respective languages.

The PARCA-R questionnaire will be supplemented with a number of health and developmental questions to be answered by the parents as well. The questions focus mainly on the individual components of the moderate-or-severe NDD outcome definition, as well as quality of life questions. It will be available on the online platform as well. Below you will find a copy of the questionnaire in English.

The principal investigators will receive a link from the Study Manager (marie.isabel.skov.rasmussen@regionh.dk), to be forwarded to parents, so they can fill it out on the online platform.

Parental Questionnaire in English

Frequently asked questions regarding the parental questionnaire for PI’s